Clare Ockwell was a founder of The Capital Project Trust (Clients and
Professionals in
Training and Learning). This is a West Sussex user-led project, set up in
1997, to train users
in service user focused training, consultancy and research. Being part of
the history group
and learning about our heritage had made a lot of sense of her own life and
experiences. Clare
told us how she had been using material on the survivor movement history in
her teaching
within CAPITAL and the interest that has aroused. One person who took part
in one of
Clare's groups wrote to the history group with information about the users'
movement in New
Zealand, Ireland and elsewhere that has added valuable new dimensions to
our web history.
We hear from other people about the inspiration of having heard Peter
Campbell, or others,
speak about the significance of history at conferences. One of these,
Lizzie Maitland, is a
member of a group who have written a booklet and are touring Leicestershire
and Rutland
with a history exhibition. Their book begins
"A user group was started specifically at the beginning of the 21st Century
by Peter
Campbell in London to write the history of user groups and the effect they
have had
on the treatment of mental health. In 2004 the Rutland Healing Group, some
users,
past-users and carers, decided to campaign for freedom and a voice in their
own
mental health treatment. This led to the start of this Heritage Mental
Health project,
The Progress In Our Age Exhibition, the book Our Local Heritage of Mental
Health
and the two pamphlets of Life-Stories."
We need to reflect on what we are doing in creating our own history. We
need to listen to
those who are inspired by the history and to learn from them what they
relate to and how it
motivates them to action. If we can hear what is said, it will help us to
tell our stories in ways
that inspire others.
Catherine Jackson asked Helen Spandler why she was involved with the group.
Helen said
that she thought the remit of the group was really important (survivors
developing their own
histories) and wanted to find ways to support this. She also wanted to
contribute to the
emerging histories of the movement, as well as potentially developing
collaborative projects
with the group. She has been discussing with Anne Plumb and others a
history of the
survivors' movement in the north west of England, where she is based.
Conversations and incidents
Recording our history provides material for many
conversations, most of which we will not hear
about.
But we need to hear about all the different groups
and events that are the substance of the story. The
members active at the centre of the history group
aim to be open to, and interactive with, others, so as
to record what is remembered and archived about
the movement. The website is an important tool for
this. The web history is created from the material
that is sent into us by its readers.
We also seek, through exhibitions and post, to
communicate with those who do not use the web. In
this way, the conversations become richer as more
and more incidents are recorded as part of our
history.
Knowing what has been achieved
It was suggested that one value of history is to know what has been
achieved. This led on to a
discussion about what had been achieved.
People listen - do we want to speak?
It was suggested that, in the past, people would not listen to users, but
that now they will.
Andrew thought there was another side to this. There was a period when
groups like
PROMPT did not want to discuss issues with the people they saw as the
enemy. At the same
time, the users working through Hackney Workers Educational Association
were setting up user controlled forums in which users, psychiatrists, anti-
psychiatrists and others, could
debate issues on equal terms. A big step forward was the Mind conference to
which CAPO (inheritor of PROMPT) went. We (rightly) put a lot of emphasis
on the fact that English
users' groups were not invited, but we should also remember that,
previously, some had not
wanted to go. Frank Bangay, later, commented on and corrected Andrew's
statement.
British Network of Alternatives to Psychiatry
Peter Campbell spoke about the importance of
the British Network of Alternatives to Psychiatry. In
the 1980s, this brought radical survivors and radical
professionals together. It included forceful characters
like Shulamit Ramon and David Hill, who had both
recently completed their Ph.D. theses (Shulamit in
1972). David was very important because of his trade
union and political links. He got users into the Houses
of Parliament and into conferences in Chesterfield
organised around Tony Benn. These links were lost
after David left.
Frank Bangay on PROMPT (Protection of the Rights
of Mental Patients in Therapy), CAPO (Campaign
Against Psychiatric Oppression) and Mad Pride
Frank spoke about the history of the movement,
including the first PROMPT meeting he went to.
PROMPT (Protection of the Rights of Mental
Patients in Therapy) was a small, but vocal campaign
group started by Julian Barnet in the summer of 1976
to
"protect the rights of mental patients, and to form
ourselves into one massive pressure group to lobby
MPs, inform 'mental patients' about what really is
going on, vis-a-vis the true nature of their 'treatments',
to bring together all our experiences and to say with
one voice 'Psychiatry belongs not in the realm of
medicine - but more in the realm of politics'."
At some time, Julian Barnet joined forces with Eric Irwin. Prior to the
national Mental
Patients Union's formation in March 1973 Eric was one of the co-authors of
a document
called The Need for a Mental Patients' Union, known because of its cover as
the Fish
pamphlet. The first part of this argued that "psychiatry is one of the most
subtle methods of
repression in advanced Capitalist society". The second part set out what a
union could do, and
was built on by the Mental Patients Union, which otherwise disassociated
itself from the Fish
pamphlet. Eric always remained loyal to the ideas set out in the Fish
pamphlet, which was
eventually resurrected as parts of policy statements by PROMPT and CAPO.
Frank Bangay became a close friend and colleague of Eric and in 2000 AD it
was Frank
Bangay who suggested the Fish pamphlet be re-printed as part of Mad Pride's
anthology.
By the time Frank joined PROMPT, most of the small group of members were
patients. Frank
said
"My first introduction to PROMPT came in 1979 when I found some PROMPT
booklets in a bookshop either in Brixton or in Stratford. I might have
found booklets
in both places. My first PROMPT meeting in 1980 was a conference at Conway
Hall."
PROMPT met first in Dulwich then in a pub in Farringdon called the
Metropolitan.
Frank recalled the early days when he met Eric Irwin. Eric's deep
bitterness and anger with
services influenced both Eric and Frank's approach to activism. Frank
changed a little when
Eric died, as did the focus of his activism, as it adapted to a changing
context.
Frank talked about the PROMPT/CAPO relationship with Mind
"When I first got involved with
PROMPT, in 1980 The boss of
national Mind, Tony Smythe, was
very supportive of Electro Convulsive
Therapy (ECT). I know this because I
heard Tony Smythe speak. This of
course made Mind the enemy - at the
time. There was one occasion I
remember when Mind held a fete at
the Maudsley Hospital in south
London. We went along with our
petitions and campaigns. Then Julian
Barnett grabbed the microphone and
started saying 'come and get your
free E.C.T. here'. Mind then phoned
the police to have us moved from the
premises."
"When the Italian experience came to
England, a few years later, we went
along. We had heard a lot about it and
about the work of Franco Basaglia
(1924-1980). However we were
disappointed to find the meetings run
by mental health professionals
speaking on the patients' behalf. No
patients from the centre seemed to be
there to speak for themselves. This
caused us to be a disruptive voice
from the audience."
CAPO (Campaign Against Psychiatric Oppression) was formed out of PROMPT in
March 1985. CAPO met in a pub called The Wheatsheaf on the Edgware Road.
In July 1985, Mind ran "Mental Health 2000", a World Federation for Mental
Health
conference, in Brighton. Apart from Glasgow Link, no users/survivors from
Britain were
invited. Eric Irwin, Barry Blazeby and Frank Bangay, from CAPO, attended,
uninvited
"We set up a stall by the door to show that we mattered too. Following
this, with a
little persuasion, we got involved with the autumn 1985 annual Mind
conference.
Here we ran a stall and gave a well received talk, Eric was on fine form. I
also
organised the poetry and music entertainments for the conference."
"In 1986 we again ran a workshop at the Mind conference. I organised some
poetry
and music entertainments for that conference as well. After this we did
from time to
time take part in Mind events."
"Our relationship with Mind was not always harmonious. I would argue that
the
friction took place on both sides. It did not just come from CAPO."
"I know we were quite critical of the move to work together with mental
health
professionals. But the mid 1980s was a time of change in the survivor
movement. It
can sometimes be hard to adjust to these changes."
Asylum A Magazine for Democratic Psychiatry started in the Spring of 1986.
This sought
to be "the freest possible non-partisan forum for anyone in any way
involved in mental health
work" The first issue had substantial material on or
including the Campaign Against Psychiatric
Oppression. The second included some opposite
points of view. Frank made clear that the publication
of alternative views was a problem for some
members of CAPO. However, he persisted in
providing material.
Towards the end of his life Eric Irwin spent a lot of
time in the library at the Westminster Mind
headquarters on the Harrow Road. It was here in the
autumn of 1987 that he collapsed and was rushed to
hospital. Eric died in St Joseph's Hospice, Hackney
Just before Christmas 1987 . CAPO was continued
until 1991 largely by Frank. After Eric's death it
decided to affiliate to Survivors Speak Out.
Frank's tribute to Eric was published in Asylum Volume 3, No 1, Summer
1988. Julian
Barnet, who was not too happy about the involvement in Mind, was also quite
angry about the
tribute appearing in Asylum. As Frank recalled
"He had his reasons as Professor Alec Jenner, the editor of Asylum,
supported E.C.T.
It was a difficult decision to make, but Eric did not altogether denounce
Asylum, and
at this point in time I felt the need to try and work with others. CAPO had
become
quite isolated. I will however say that there were times when I did enjoy
working with
Julian, and I respected the work he did as an activist and campaigner."
After Eric died. Frank's involvement with CAPO continued. He also got
heavily involved with
the London Alliance for Mental Health Action , or Lamha, which was formed
in October
1987. Frank found that
"some of the younger activists in Lamha criticised me for not being
radical enough".
"The days of PROMPT and CAPO are a long time ago now. Some of my memories
from that period are quite painful. Other memories are easier to come to
terms with.
I have been through a lot since then, so I obviously see things a bit
different now. But
I feel honored to have known and worked with Eric."
Mad Pride
For Frank, a major focus of activity in the 1990s continued to be
poetry. On Monday 15.3.1999, a day of protest against
compulsory community treatment orders ended with some poetry
from Frank Bangay, and a minute's silence for people who had
died in the mental health system. The day had been organised by
the group called Reclaim Bedlam. This was formed in the
autumn of 1997 to carry out street protests as a counter-culture to
the celebration of 750 years of Bethlem Hospital. Its politics and
tactics were inspired by the direct action of the anti-road building
Reclaim the Streets movement.
Reclaim Bedlam organised its first cultural event ("gig") under the title
Mad Pride on
20.6.1999. "Frank Bangay, veteran of Campaign Against Psychiatric
Oppression and
survivor poet read from his latest book" and "Ted Curtis - co-author of
punk novel Seaton
Point - did some assorted storytelling".
In June 2000, Ted Curtis, with Robert Dellar, Esther Leslie and Ben Watson,
edited Mad
Pride: A Celebration of Mad Culture, with a selection of twenty-four
essays, including one by
Frank, "An Uphill Struggle, But It's Been Worth It", telling the history of
poetry and the
survivors' movement. At Frank's suggestion, the 1973 Fish pamphlet was also
included with
the following introduction
"Originally published in 1974, this now rare document, also known as "The
Fish
Pamphlet", is said by some to mark the beginning of the organised `survivor
movement' in Britain as it can be recognised today. The document is
therefore of great
historical and political importance. According to folklore, survivor
activism was at the
time particularly strong in West London, where a network of squats was
established to
provide `safe houses' for people in distress. The Mental Patients Union
evolved during
the 1970s into PROMPT (People for the Rights of Mental Patients in
Treatment),
which eventually turned into CAPO (Campaign Against Psychiatric Oppression)
in
the early 1980s. CAPO went on to issue a seminal manifesto which is still
regarded by
many as inspirational; however; we include instead here the original MPU
document,
which predated and provided a template for the CAPO manifesto. Although
some of
the following material and the language used may appear dated, it is a
timely reminder
of where it is that the `survivor movement' has come from, and sets the
context for
this book in more ways than one"
Phil Ruthen described Mad Pride as having
an iconic and romantic status. Was it
something of its time? - It has not all been
recorded - people have memories of events
they thought to be significant of which there
appears to be no written record (yet).
However, Mad Pride, like PROMPT and
CAPO, have made a firm imprint on the
minds of historians.
There was some discussion about why
certain parts of the movement are
remembered like this, and other parts
overlooked, and it was suggested that
involvement in "chipping away at services"
is not very glamorous.
Mad Pride considered itself an art form.
Ben Watson wrote "Madness is just Modern
Art without the authoritarian intimidation".
There was creative drama in both the
protests and the culture, although the reality
behind the drama became cruelly clear
when Peter Shaughnessy killed himself on
14.12.2002.
We discussed the possibilities of people
acting madness for whatever reason, and
whether there are realities of mental distress
that are marginalised by the drama?
Complexity of the history
There are different versions of survivor history. Eric Irwin's innovative
version in Asylum,
Volume 3, Number 3 (published after his death), sees the Mental Patients
Union as a branch
of "anti-psychiatry". A similar interpretation is given (briefly) in Mad
Pride: A Celebration of
Mad Culture (2000) and in an expanded version in Nick Crossley's and Helen
Spandler's
histories. Extended forward in this way, it draws a Need for a Mental
Patients Union (Fish
pamphlet) - PROMPT - Survivors Speak Out - Mad Pride trajectory. This
presents the
1972/1973 pilot committee's Fish pamphlet as if it was the unions. That is,
it analyses a
pamphlet (and one not written by a mental patients' union) in place of
analysing the real
unions. Criticising this version, Andrew Roberts (who was not anti-
psychiatry) argues against
ignoring the activities of the real mental patients' unions, from Scotland
down to Portsmouth,
before and after 1973. He argues that histories developed from Eric's
version tend to be
London centred, not usually mentioning the Federation of Mental Patients
Unions formed in
Manchester, for example. The "branch of anti-psychiatry" argument leads to
a focus on the
activities of ex-patients and anti-psychiatric "allies". This means the
unions and user groups
inside hospital, from which much of the momentum came, are overlooked. The
interpretation
also omits the subsequent activities of user groups, (apart from the
Campaign Against
Psychiatric Atrocities), prior to the 1985 World Congress at Brighton.
Andrew wants us to use empirical, archival and other, materials to create a
more complex
version of different histories, including collective activities in
hospitals, and action in
Scotland, Manchester, Leeds, Bristol and east and south (as well as west)
London. This more
nuanced version must include, but not be pre-occupied with, the very
political groups, and the
anti-psychiatry tradition in the movement. It should make space for local
groups of patients;
for housing schemes run by patients; for women's groups and black and
ethnic minority
groups; for groups that include users and carers; for the development of
self-advocacy by
people with learning difficulties; for mental distress in old age
activities; for grass roots
activities as well as sensational media events; for activities that defend,
reform or develop
services, as well as for those that attack them, and for the quiet voices
underneath the loud.
Radical or assimilated? Abolition or improvement? For or against
psychiatry?
Is the movement more or less political now? Are there clear trends in our
history or a
complex interweaving of diverse themes? Catherine Jackson and Peter
Campbell argued that
there is now more focus on involvement and improving services and less
radical antipsychiatry
action. In the early 1980s (especially) some people wanted to abolish
psychiatry or
mental health services and, possibly, replace them with alternatives.
Nowadays we hear less
of this approach. The users' movement may have been assimilated.
Ian Ray-Todd spoke of his own experience of the movement in Hackney in the
1980s: People
did not want to abolish services. If anyone talked about abolishing
psychiatry it was in the
context of challenging the hegemony of the medical model. People were
critical and
challenging of assumptions, but one aim was, nevertheless, to improve
services. Clare
Ockwell pointed out that this included the prospect of providing our own
services. Ian and
Andrew were both involved in efforts to secure funding for a "user
controlled mental health
centre for Hackney", for example .
Everyone seemed to agree that some trends could be identified - But we
could not agree about
what the trends are.
It always seemed to be more complex when Andrew described the history. He
argued that
there was a well documented involvement in improving services dating back,
at least, to the
late 1970s. He also pointed out that Mad Pride, which used direct action
against psychiatry,
claimed that it was "set to become the first great civil liberties movement
of the new
millenium" - that is the 21st century.
Participants also disagreed about their attitude to psychiatry and
treatment. In describing the
action around the 'celebration' of 300 years of Bedlam, Peter characterised
the history of the
mental health services as "300 years of oppression". Andrew said that his
own experience of
mental health services had mainly been positive.
Mark Cresswell spoke about the pressure to simplify and distort issues when
writing in an
academic context. He feels that a "good story" is wanted, rather than
something that
corresponds to the diversity and complexity of what actually happened.
Academics, if 'left to
their own devices' will always over-simplify, so we cannot rely on these
histories alone
But simplicity had its champions. Ian cautioned us "lest we shoot the
project in the foot". We
should bear in mind Samuel Johnson's dictum that a degree of compromise
with simplicity is
essential to communicate crisply.
Hidden histories and neglected geographies.
We talked about the hidden histories of the movement, including the ones in
people's
memories and in archives preserved by individuals up and down the country.
The web project
is seeking to list and explore these. Much may be lost if we do not succeed
in this.
On the train back to Lancashire, Helen Spandler wondered whether we could
also look into a
funded Ph.D. studentship to research the hidden histories. This would be a
good way to get
someone, preferably a survivor researcher/historian, to spend three years
researching the
material.
Helen also noted the geographical dimension in our analysis which was
highlighted by the
contrast between the users' movement east and west London. Peter Campbell
suggested
research would be useful into why groups persisted in one form in some
areas and mutated in
others. Andrew Roberts thought the relevance of geography was even more
salient in the
absence of discussion of the movement outside London. Hardly any mention
was made of
Scotland, Lancashire, Yorkshire, Nottingham or Bristol, although the
significance of what
happened in each of these areas was as great as that of anything that
happened in London.
Helen mentioned the work of Glasgow based social geographers in our field
of study and will
attempt to make contacts for us.
libraries, but closed to the users outside the universities. We need ways
of enabling users to
write their own diverse stories, and we need ways to preserve and make
those stories
available to future generations. Helen also thinks that the group should be
finding ways to
record any inaccuracies in the official accounts and histories - so that
they do not get
repeated.
What kind of history?
Phil Ruthen has argued, at an earlier meeting, that the Survivors History
Group works in
many ways as a social science project with a historical perspective. He
made reference to the
"mutually beneficial" links we have made with university departments and
individual
researchers, with Survivors Poetry, and networks of survivors. Since the
conference he has
helped to establish a web forum in which survivors and academics can
document and discuss
history. Given this, Phil suggests that we should subscribe to the ethics
and other norms of the
social science disciplines
Frank Bangay having asked for clarification on what was meant by social
science in this
context, Ian Ray-Todd had submitted reflections on the "scientific" aspect
of our ongoing
research and the nature of the "history" that we are constructing. He
thought we could discuss
whether to seek standards of objectivity that would make our research
acceptable to the social
science community or whether to emphasise the "intrinsic worth" of what we
do to the users
and others who take part in constructing it, or who come across the end
result. The two
approaches might be combined.
Ian read from and elaborated his notes on this idea:
Thinking: Social Science: 'Normal' or New Paradigm?
* What does the Survivors History Group understand by social science? Are
we content to
treat social science and its standards, such as 'objectivity' and
'professionalism' as not worth
contesting?
* What is the meaning of 'history'? How do we define it? How do we describe
it? What are its
implications?
Value addition
Must the fruits of the Survivors History Group's first substantive research
project be
sufficiently original to add real value - in the opinion of competent,
respected, professional
historians - to society's store of self-knowledge and understanding?
If not, would their intrinsic worth, to the people nevertheless
subjectively interested in the
fruits, be quite enough to justify the project? Ian thought it would, but
also asked:
Would there then be a sufficient element of public (as distinct from user)
benefit,
educationally or otherwise, to secure funding? How much would this matter?
Ethics and methods
Ian challenged us to reflect quite carefully on "the most appropriate
methods of realising the
aim of an ethically sound, yet subjectively resonant, authentic mapping of
the terrain which
the various narratives testify". He laid down some principles:
* To separate opinion from fact, reasonably clearly, without becoming
stylistically robotic, is
virtuous.
* To think that the unalloyed facts speak for themselves is to indulge in a
delusion.
* We cannot be inclusive if we use a jargon quite as impenetrable to
ordinary folk as
medieval clerical Latin.
* We should value the respect of academics but decline their services as
amanuenses (people
who write for people who cannot write for themselves).
Class
Mark Cresswell and Phil Ruthen had a brief discussion about class and
mental health. They
concluded that class is a dimension that has dropped out of recent
research, however much
they might lament its disappearance. This discussion concerned class as a
socio-economic
concept, as in research about working class mental health. A broader issue
concerning Phil is
the idea of users and ex-users of mental health services as a class (group,
category) in
government policy, and their eventual class-excluded position in socio-
economic life. He has
provided the group with a 6,000 word summary of his thesis on this.