Presentation by
Andrew Roberts, secretary
Survivors History Group
at the 3rd Qualitative Research on Mental Health
Conference (Nottingham) 25.8.2010.
But social science includes
structure and
history.
Theorists from
Mary Wollstonecraft to
Michel Foucault have
used history as a research method.
History as a methodology is not reinventing the wheel,
just acknowledging that our science has wheels.
A recent analysis
(Survivors History Group 31.3.2010) suggests
that the history of the mental patients' movement written by ourselves has
had a different content and a different methodology to that written by
others.
Our histories have tended:
1) to be histories of the movement,
2) to have a descriptive or a reflective approach,
3) to be collectively constructed
It was formed to preserve and
develop what the survivor movement had already done.
It inherited a rich tradition of survivor history writing.
The empirical quality of the survivor history research stream has been
stronger than the academic stream.
(Survivors History Group 31.3.2010)
Social science academics place a very high value on critical theory and
frequently criticise concern for empirical accuracy.
Survivor historians tend to place an equally strong value on getting our
empirical descriptions right and even avoiding theory.
1996 Peter Campbell and reflective history
in 1996, his
"The history of the user movement in the United Kingdom" was
published as chapter 26 in the Open University reader Mental Health
Matters.
This is the classic reflective history of the United Kingdom
movement. By reflective I mean that Peter does not simply recount history,
but does so as a reflection on its significance for the movement.
But not collective. The Survivor History web site aims to be descriptive
and relatively neutral with respect to interpretation.
Collectively, we have deliberately avoided creating a "party line".
The Health Through History Initiative
History is more than a research method for survivors.
Tower Hamlets African
and Caribbean Mental Health Organisation (THACMHO) was started
by mental
health service users in 1996. Its projects include "The Health Through
History Initiative".
In 1997 Royal Bethlem Hospital commemorated its 750th Anniversary and
precipitated a dramatic conflict with some mental health service users over
the interpretation of history.
A group of mental health survivors took to the streets in "Reclaim Bedlam"
protests. It was out of this that
"Mad Pride" developed.
Reflecting on this conflict in 1998, Peter Beresford argued that
Before all the old asylums were converted into luxury flats, Peter called
for lottery millions to be poured into preserving one as a museum and
archive run by psychiatric system survivors.
There were to be two aspects to this memorial:
First, it was to preserve a user's view of psychiatry's
history (and present).
Second, it was to preserve and publicise the history
of the mental health survivors movement.
Frank Bangay's collected works, Naked Songs and Rhythms of
Hope was launched at Mad Pride's "first ever gig" on June 20th 1999.
On Our Own Terms is the most important printed empirical contribution to
the academic history of the survivor movement so far. No one else has
attempted anything approaching it.
The whole research project was
collectively controlled by survivors. Depite its academic credentials it is
often not noticed by historians outside the survivor history movement.
The On Our Own Terms research is the immediate background to our own work
and several of the people involved in it are active members of the Survivor
History Group. The Survivor History Group later used its historical table
as one of the starting points for our web history of the movement.
Survivors History Group - archives
Survivors History Group
began in 2004/2005 as an archival project to rescue
the physical history of the mental patients' movement from the skip.
This is believed to be the first time that
mental patients made a collective presentation to a Mind Conference.
Individually, some of our members preserve extensive archives in their own
homes. These include the records of the Scottish Union of Mental Patients
(1971-1972) the Mental Patients Union started in London in 1973, Survivors
Speak Out (1986-2009) and the United Kingdom Advocacy Network
(1991-present).
We are
seeking ways to preserve such collections for future public access.
In the meantime we have adopted a policy of
listing important archives in a way
modelled on the idea of listed buildings.
Survivors History Group - manifestos
A summary manifesto drafted in July 2005 became the basis for a fuller
statement in January 2006
We are to be survivor-led and operate as an independent group, but will
willingly cooperate with interested allies.
We did not want to impose a history on others, but to find ways in which
the full diversity of user/survivors can record and share history.
We also wanted to draw on the
different forms that survivor history has taken
The long manifesto commented on the construction of
history to the
exclusion of the patient and on the need for a space in which patients
could make our own history.
Our "basic founding
principle" was to be that "service users own their history".
We would
"acquire materials from the full range of people involved in the mental
health service user movement"
"develop a
publications policy" and "make as much material as possible available
electronically".
Our visitors come quietly in by the world wide web and sometimes
email us with contributions to the exhibits. But the web site is an
an archive and a museum. It is copied every six months or
so by the
UK Web Archive for perpetual preservation. Anything we put
on it will be preserved as securley as a book in the British Library or and
exhibit in the British mueseum.
The website was adopted by the group in June 2007. The "studymore" site was
created to enable archiving by the National Web Archive and this began the
following month.
The pictorial fish - heart - snake logo was adopted from the
archives of the Mental Patients Union at the same time.
The website includes:
The story/stories of the movement in the form of a timeline.
Individuals' stories inter-related to the story of the movement.
Detailed information boxes about individual events or groups.
Indexes of
survivor history related features in magazines such as Asylum and Open
Mind.
Reviews and summaries of books and articles about survivor history.
Copies of articles.
Copies of documents and images from the movement's history.
Lists of paper records about groups. Lists of books and pamphlets and
records of where papers, books and pamphlets are preserved.
Theory of history
Methods of Survivor History
Participants' memories/stories
Interviews (Secondary collection of above)
Diaries and autobiographies
Questionnaires
Contemporary observation and participant observation
Archive collection
Primary analysis of movement literature and relevant media reports
Putting things in date order
Annotating poems
Reading and reflection
Secondary analysis of literature
Discourse analysis and other sociologically informed approaches
An that is where I will leave you - With the reflection that buildings with
dreamy spires and no foundations do exist. We see them in the clouds
They were used to illustrate the cover of
Julie Ford's
Paradigms and Fairy Tales. An Introduction to the Science of
Meanings in
1974.
It is possible for
description and
reflection to live in partnership with
imagination and
theory.
It is also possible for academics to respect the care
that survivors have given to the
construction of an
empirical history of
our
movement.
|
|